Lise Michaud’s brother, Eddy Lefrançois, made every day count. He lived nearly three decades with ALS, proudly defying the odds and outliving his “expiry date” (EXP: 04.97) which he tattooed on the inside of his forearm as a reminder to live with passion and purpose. Eddy’s personal motto – “Let’s Roll” – always kept him […]
Walking in memory fuels hope and strengthens community
Published in Events, Walk To End ALS on June 18, 2019
Tags: ALS researching, find a cure for ALS, finding a cure for als, funding als research, how to live with als, living with ALS, motor neuron disease
Offsetting the loneliness and isolation of an ALS diagnosis with love and support
Published in Events, Walk To End ALS on May 23, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, motor neuron disease, treating als, walk to end als
For the past 40 years, Dale Hodgins has been saving lives as a paramedic and volunteer firefighter in Kingston, Ontario. In December 2018, he was diagnosed with ALS – a disease he was already familiar with through his work. As far back as the 80s and 90s, Dale remembers driving people living with ALS home […]
Positive and pragmatic – an approach for one family facing the realities of ALS
Published in Events, Walk To End ALS on May 15, 2019
Tags: 2019-personal-stories, ALS, als cure, als research is important, als research matters, Amyotrophic lateral sclerosis, Amyotrophic lateral sclerosis cure, finding a cure for als, finding a cure for motor neurone disease, motor neuron disease, motor neurone disease cure, treating als, walk to end als
According to Kevin, there’s one word that sums up ALS: a thief. “ALS is a thief – and a remorseless one at that,” he explains in writing. Now that he can no longer speak, he uses eye gaze technology to type messages with his eyes – his only method of communicating. “The sooner we can arrest […]