How a grandson learned to cherish every moment

When Fabio talks about his grandmother Giuseppina, the love and respect he has for her is unmistakable. The woman he describes is warm, fun-spirited and hard-working; a woman who would do anything for the ones she loves. As the eldest of eight grandchildren, Fabio shared a unique bond with Giuseppina, who passed away earlier this […]

From grief to hope: how my grandfather’s ALS diagnosis gave me purpose

From a very young age, my grandfather and I had a special connection. I remember as a young girl, he and my grandmother would go to Portugal for six months at a time. When they returned, I refused to leave his side and would spend hours just staring up at him, thinking how lucky I […]

“I am so much more than my physical abilities”

The only muscles Jeff can fully control are behind his eyes. He lives with ALS, but that hasn’t stopped him from staying fully engaged in life and finding purpose in helping others. That’s the way he’s always been, says his wife, Darlene, who has known him since high school. Nowadays, everything takes extra time, but […]

A Daughter’s Resolution to Honour her Father

If you were to have asked Kimberley a couple years ago the definition of Amyotrophic Lateral Sclerosis, she would have admitted that she did not know. Medically speaking, the word “lateral” identifies the area where nerve cells in the spinal cord that nourish the muscles are located. As nerve cells die, the muscles receive no […]

Finding Comfort in Creativity

When life hands you an ALS diagnosis, the fear of the unknown can often prevent you from embracing the present. This is something Mary-Anne experienced first-hand three years ago, when she was diagnosed with ALS. During a vacation in Puerto Vallarta, Mexico in 2012, on her way to a yoga class, Mary-Anne tripped and fell […]