Specialized equipment helps people with ALS face the many challenges of daily living

Living with ALS includes having to adjust to many physical challenges including loss of mobility and communication. Access to specialized equipment can go a long way to help people with daily living as their symptoms change. At ALS Canada, Client Service Coordinators Alexandra, Suzanne, and Sharyn are part of a tight-knit team working behind the […]

Who does what?

If you are diagnosed with ALS in Ontario, you can access information, care and support through a few different sources: ALS Canada, your ALS clinic, and the LHIN (Local Health Integration Network, formerly known as the CCAC or Community Care Access Centre). Understanding the different role of each organization can help you decide who to […]

Talking about ALS with friends and family poses special challenges for caregivers

Caring for a loved one with ALS can bring out some of the best qualities in a person ‒ commitment, compassion, and resilience among them. At the same time, it is a stressful, emotionally draining, and sometimes overwhelming role. Being a caregiver to someone with ALS means new responsibilities and considerations as well as unexpected […]

Holiday gift ideas

What do you give someone living with ALS to show you care? There’s no ‘one-size-fits-all’ gift that works for everyone, but there are special ways to say “I am thinking of you.” The holiday season can be a perfect time to do just that. We recognize that it’s not always easy to know how to […]

Seven ways to support ALS Canada this fall

The following initiatives are based in Ontario. To learn more about the events in your area, please visit your provincial ALS Society’s website. 1. WALK for ALS The WALK for ALS is a community-based fundraising event that is organized and led by volunteers. By participating in a WALK, you are supporting people living with ALS, […]

Improved community-based support for people living with ALS

Updated November 28, 2017 As we mentioned in an earlier post, ALS Canada has made some improvements to our service offering with the goal of strengthening the support we offer to people and families living with ALS in Ontario. In mid-July, we shared some of the enhancements made to our equipment program. Another important area […]

Do you use ALS Canada’s Equipment Loan Program? Improvements are here!

Updated November 28, 2017 In a previous post we shared that we would be implementing a series of improvements to better serve people and families living with ALS in Ontario. One of the improvements we made was to our equipment program, which provides people with a range of items – mobility devices, lifts and transfers, […]

Paying it forward to benefit people with ALS in the future

Deirdre O’Connor and her husband, Floyd, became ALS Canada donors 15 years ago. At the time, they had no personal connection to the cause, but they liked the fact that ALS Canada was a small, cost-effective charitable organization without a lot of overhead. Deirdre’s generosity extends to half a dozen or more organizations she supports […]

Honouring Mom this Mother’s Day, and always

For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be the first Mother’s Day she spends without her mother, Margaret. After participating in the 2016 […]

Trevor and Jennifer: Finding love while living with ALS

This Valentine’s Day, we would like to highlight Trevor and Jennifer’s story about finding love while living with ALS. – Trevor was my first love in high school. Although short term, the strong connection we had was never forgotten. We lost track of each other but reconnected again after 28 years on Facebook in 2015. […]

WALK for ALS early results: $3.9 million (and counting!) raised nationwide

Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the country – from Victoria, BC to St. John’s, NL, and from Windsor, ON to Whitehorse, […]

Become a fundraiser through community engagement

Community engagement plays a really important role in fundraising for ALS Canada. We are grateful for everyone who gets involved and dedicates their time to hosting BBQ’s, block parties, dance-a-thons, and Ice Bucket Challenges! We could not do the work we do, without your support. Meet Kinga Repic. ALS Canada: What kind of community events […]

Love wins against ALS

1988. At the office. A young independent redhead grabs Jocelyn’s attention immediately. She emits a contagious “joie de vivre” that instantly seduces the young man. Chantal, on the other hand, was charmed by Jocelyn’s ability to listen and his sincere consideration for everyone around him. After almost 23 years of marriage and a daughter named Maya, their […]

Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks

We are pleased to advise you that the Government of Canada has announced the activation of the extension of the Compassionate Care Benefit (CCB) from six to 26 weeks. Effective January 3, 2016, caregivers can now claim up to $13,624 in benefits, where previously it was $3,144. We hope this announcement will now relieve some […]

Today is Giving Tuesday

Today is Giving Tuesday. On this very special day of giving from the heart, I hope you’ll give the most precious gift of all — the gift of hope. Right now, approximately 3,000 Canadians are living with ALS (Amyotrophic Lateral Sclerosis) — a degenerative disease that quickly and progressively steals a person’s mobility, speech and […]

Thank you to everyone who took the ALS Ice Bucket Challenge 2.0

Last month, the ALS Ice Bucket Challenge was re-ignited by the ALS Community. The team working at the Toronto Blue Jays Baseball Club have always supported the Community and the cause. Last month, they extended an invitation to ALS Canada to bring clients and their families and donors together to enjoy a game. We want to thank […]

ALS community challenges Canada to take the ALS Ice Bucket Challenge

“The ALS Ice Bucket Challenge gave me back the voice that ALS was taking from me. It took my personal struggle and gave it validation and hope. We need to keep going to fund research so that one day ALS will be treatable, not terminal. I accept the passing of the bucket from co-founder Pat […]