Giving back to stop ALS from taking more

According to Brian Heaney, the Kitchener/Waterloo WALK for ALS is the “best day of the year.” As a dedicated participant attending the WALK for his eighth year in a row, Brian has a robust understanding of what the WALK for ALS in his community is all about – and he looks forward to attending with […]

Long-time altruist lends his voice to ALS cause

Throughout his career, Vincent Quinn has worked with people living with disabilities, tended to social justice issues for homeless youth and adults, and facilitated support groups for people who have lost someone to suicide. Today, he volunteers his time to the Barrie WALK for ALS and the Board of Directors of ALS Canada, where he […]

Almost 30 years living with ALS and volunteering just as long

ALS usually moves at a rapid pace but Sharon Carson has been living with the disease for almost 30 years. It started with loss of control in her hands and arms making it difficult for her to manage doorknobs, seatbelts, buttons, and shoelaces – and then restricting her ability to drive, dress herself, and eat […]

Walking for a common cause keeps the Bailis family connected

Brigitte Bailis is described by her three daughters as a friendly and easygoing woman that was more of a friend to them growing up than a mom. As someone who liked to run, salsa dance, cycle, and try new things, Brigitte was the kind of mom that her daughters wanted to go for coffee with. […]

WALK for ALS fundraiser inspired by the hope of future treatments

When Mike Rannie first noticed a problem in his right hand in October 2016, he assumed it had something to do with the arthritis he had been living with for 14 years. In fact, the lack of mobility was an early symptom of ALS. After a series of tests and consultations with neurologists, Mike received […]

Making life better for people living with ALS today inspires couple to pay it forward

Sandy and Mark Vivarais’ three-year-old grandson, Keaten, is a ray of sunshine in their daily lives, especially now that Mark has been diagnosed with ALS. Keaten is also a great little helper. He loves to put Mark’s socks on and comb his hair for him, simple tasks Mark can no longer complete on his own. Keaten […]

Kingston family raises funds, awareness and hope for a future without ALS

Joe Pacheco has found a way to channel his ALS diagnosis into positivity and a renewed sense of purpose to support others. Having been diagnosed in late 2012, he has been living with the disease for almost six years — time he has used to help raise funds, awareness and hope for a disease with […]

A decade of strength, support and hope in Georgetown/Acton

Over the past decade, members of the Georgetown/Acton community have rallied together to help people and families living with ALS make the most of every moment, raising $1.6 million for ALS Canada — funds that provide help to those living with the disease today and hope in the form of research investment for a future […]

Halton family challenges ALS by giving back to the community

When Mike and Carmen Cels participated in the Ice Bucket Challenge in 2014, they had no idea that ALS would affect them on a personal level. Both professionals in the pharmaceutical industry, they were peripherally aware of the disease at the time; however, it wasn’t until Mike was diagnosed with ALS in 2017 that they […]

The power of connection – one family’s experience with ALS

Throughout his lifetime, David Urlin has worn many hats. He has worked as a farmer, a businessman, a hotel owner and a deputy mayor, and in his spare time he used to play football, baseball, hockey, and racquetball. Then in 2016, everything changed. “David always did so much,” says his wife, Mag. “He cooked, he […]

Deanna Fennell: moving forward and giving back

For many years, the WALK for ALS has been bringing people together in support of a shared cause. Everyone has their own reasons for participating: some go to support a recently-diagnosed friend or family member; others focus on raising awareness, and some people WALK to honour the legacy of a loved one. “My mother was […]

Kristine Lee: making adjustments along the way

For the past decade, Kristine Lee has been progressively losing the ability to stand on her own. A wife and mother of two, Kristine has upper motor neuron predominant ALS, a form of the disease that typically progresses more slowly than others. A few weeks before her local WALK for ALS, she opened up about […]

Honouring Mom this Mother’s Day, and always

For many families, Mother’s Day is a time of celebration and joy. For others, it can be a time of sadness and reflection when there is an empty seat at a once-filled dinner table. For Anna Acheson, Sunday will be the first Mother’s Day she spends without her mother, Margaret. After participating in the 2016 […]

WALK for ALS early results: $3.9 million (and counting!) raised nationwide

Throughout the spring, summer and fall of 2016, Canadians showed they care about beating ALS, the devastating neuromuscular disease that gradually paralyzes people and takes away their ability to move, talk, swallow, eat and eventually breathe. In communities across the country – from Victoria, BC to St. John’s, NL, and from Windsor, ON to Whitehorse, […]