Positive and pragmatic – an approach for one family facing the realities of ALS

According to Kevin, there’s one word that sums up ALS: a thief. “ALS is a thief – and a remorseless one at that,” he explains in writing. Now that he can no longer speak, he uses eye gaze technology to type messages with his eyes – his only method of communicating. “The sooner we can arrest […]

“Team Ed” a demonstration of love and support at the Walk to End ALS

Entering his 60’s, Ed Parcells was in the best shape of his life. He ran most mornings, cycled 60-100 km a few times a week, and played hockey on a regular basis. At the time, he and his wife Ev had sold their house and were looking forward to travelling and enjoying their retirement together. […]